Show your support
Oh no Just here to tell you that you’re a great mum . I hope this phase passes soon . Lots of love
Awww sorry to hear about your son ❤️ I have a son who is now 2.5yrs old he had also born at 24wks after my waters broke at 22wks , he did have chronic lung disease- I was told as he gets older and his lungs grow he will overcome it and it'll go away! He also had a PDA which eventually closed by itself. My son also had treatment for suspected NEC - Honestly these nicu babies are strong ! If your on instagram.com miracle moon is great and also Bliss. I know everyone has a different feelings, in our journey I always stayed positive I think that's what kept me going. We just had our daughter at 39wks in January but again at 21wks my cervix was opening so we had a stitch put in and I carried with a stitch till they removed it at 37wks , then I gave birth at 39wks. Your not alone and it's normal to have flashbacks or feel alone , because unless you have lived in the nicu life nobody understands xx
@Kirsty firstly you are doing an amazing job. This NICU journey is not easy. My daughter was born at 23 weeks in June. She is now 39 weeks corrected and now in special care. She has chronic lung disease, has had NEC, a number of blood transfusions, ROP and a number of infections. Amazing is the main word to describe her. It can be lonely but being on the neonatal unit has pushed me to come out of my comfort zone and speak to other NICU parents. Does your local hospital have a support group? Always here to chat if you want to.
Also a preemie mum to a 28 weeker little boy, now 4, but also his twin sister who we lost in neonatal at 7 weeks old. Sending you lots of love and support. It’s hard sometimes but there are lots of great groups on Facebook and instagram. Check out Parents of Preemies on Facebook xx
Hi Everyone, I’m looking to engage with people who have had a very early premature baby with ongoing health issues as I’m struggling and finding my new normal very isolating. My daughter was born at 27 weeks. She’s now 17 weeks (4 weeks corrected) She has chronic lung disease, a hole in her heart, a heart murmur and she’s overcome NEC. She also has issues with her haemoglobin levels and has already had 2 blood transfusions. We were in neonatal for 10 weeks and 2 days. Lots of on going appointments and multiple hospital admissions since being discharged. I’m dealing with all this alone as well as recovering from a mental break down after the pre term birth (24 weeks) and death of my little boy last year. Just looking for some support from people who have been the same position.