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A support group for mamas who have babies with Supraventricular tachycardia (SVT).
S in Skin conditions
My 5 month old was recently in hospital with a HR of 240 due to catching covid. He was monitored for 48 hours to make sure he didn’t go back into SVT. Now we’re home and he has 3 big sticky patches on his chest from where the electrodes were. Any advice for getting this off? We gave him a bath to soak them but it d...
K in Trying for a baby
Hi everyone, my baby was diagnosed with SVT when I was 28 weeks pregnant, treated with flecainide. We gave birth at UCLH in London and straight away our little man had an episode. He’s been on flecainide since, but unfortunately had 2 more episodes since… which has led to further hospital stays and the introduction ...
S in Baby milestones
Hi all, My son was diagnosed with SVT when I was 32 weeks pregnant. This was controlled with digoxin via myself and then propranolol 3 times a day. He is now 13 months and touch wood hasn’t had any SVT episodes since birth. The specialist now wants him to come off his medication to see if he has outgrown the SVT ...
K in Trying for a baby
Hi all! I know this isn't a very active group since this condition is rather rare but I'd love some postive stories. I was diagnosed at 28 weeks, and have been hospitalized since- (it's been almost a week now). We have the rhythm just about controlled with digoxin and flecainide. I'm hoping with my next dose it won'...
S in Common illness
Hi all My little boy was born on 18th Jan and came out during an SVT episode so he was diagnosed immediately. He was in NICU at our local hospital but quickly blue lighted to Leeds. He stayed there for 15 days to get his medications under control and was put on amiodrone and propranolol. He was discharged home and ...
