Anencephaly Awareness

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Anencephaly Awareness

This is for mamas who have had an anencephaly baby or who’s baby has been diagnosed.

20 members

Latest Posts

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30 weeks tomorrow

I’m so frightened of having my baby because I know my time with her will be limited but at the same time I cannot wait to meet her. Carrying to term is the toughest decision I’ve ever made. Everyone keeps telling me I’m so brave but I don’t feel it! I just feel scared.

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1 comments
Z

Z in Miscarriage

Currently 15 weeks

Hi, I haven’t seen a lot of cases in the UK so haven’t been able to find anyone to talk to… I just wanted to find somewhere I feel I can be heard without having to explain the diagnosis and have my thoughts and feelings understood rather than the same old “I can’t imagine what you’re going through” and then feeling ...

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2 comments
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M in Miscarriage

I feel id rather have a miscarriage then this

On May 9, 2024, I walked in the my dr appointment like I have done for the past 4 times. Happy and in love with my baby boy. We did a 3d ultra sound everything looked normal until we did the scans of the head. My dr walked in right in the middle of the pictures, he told my mom, my husband and I what our baby had it ...

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2 likes,7 comments
Incognito

Incognito in Pregnancy termination

Would it be cruel?

Posting anonymously because I’m scared of my situation. My babe has been diagnosed with anencephaly and I’m now 13 weeks. I have an appointment on monday to decide what to do and I’m totally lost. I’m as pro choice as a person can be but I’ve always hated the idea of getting a termination and I don’t think I can d...

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7 comments
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E in Childbirth

Carrying to term - Nathaniel’s Story

My first pregnancy was going well aside from some nausea up until my 12 week appointment. During the NT scan, my baby was diagnosed with acrania and anencephaly. We saw a MFM high risk doctor the same day for a more detailed ultrasound, and they confirmed the diagnosis. We were told the baby had a 20% chance of maki...

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31 likes,4 comments

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