craniosynostosis??

My nearly 11 year old was born with craniosynostosis feel free to message me lovely xx

There is a really helpful fb group where I have seen this mentioned... https://www.facebook.com/groups/169764948019732/?ref=share I'm on it as my little boy had torticollis and slight plagiocephaly and have found it useful!

My three year old was born with it. She had surgery at 3 months old. She wore her helmet until one year and after that you can’t even tell. The leading up to the surgery was the most difficult part for me and seeing her in recovery. She’s doing absolutely amazing and as wild as ever.