High risk pregnancy

• Have you asked what the likelihood is of survival if they get her out now as apposed to waiting? • What they can do? • What hospitals will help? • Can you get a referral to GOSH & Speak to a consultant there? Their job is to enable you the opportunity to make an informed decision. Please don't let them try and force you into anything. Trust your instincts ❤️ Sorry you are experiencing this 😢 hope all works out ❤️

I haven't experienced this but I really hope baby girl proves them even more wrong and is a fighter. Above gives some good suggestions though, sending love 💙

@Billie they do not want to induce me they say the earlier she is born the less chance of survival I have spoke to so many consultants they did try encourage me to have an abortion but I have decided to continue the pregnancy

I’m so sorry about your girl. I haven’t heard or any experience but I’m sending love to you and keep strong 🙏

Have you been in touch with any charity for support? Somewhere like Tommy’s maybe ❤️

Have you only spoken to those at your hospital?

I have spoke to my main hospital I also go to a specialist hospital for babies as well as getting a second opinion at a private Fetal medicine institute x @Billie

@Maeve no but I will defo give it a try

Have they told you a plan at all? If you agree to get rid as soon as you agree and take that meds even if they're wrong they legally don't have to help at all as you signed their life away... I know someone who was told their baby wouldn't survive birth, got pressured by professionals to get rid... they took the meds, got induced... baby was born alive. They wouldn't help the baby because they'd agreed to get rid. They need to put a plan of care in place. If baby is born alive and they do nothing when you've not agreed to get rid, I believe you may have grounds to sue them. The truth is, if you don't fight for your children no one else ever will... It cannot be easy and I can't imagine being in your shoes but your baby is extremely lucky to have a Mummy whose fighting for her ❤️ xx

@Billie not really they have just been talking to me about comfort care palliative care for when she’s born I’ve told them I want them to do everything they can to save her but they are only suggestion comfort care to make her as comfortable when she passes over but they said they will only know for sure what to do on the day she’s born once she’s out and what state she’s gonna be in

I have no experience of this specific situation but I have everything crossed for your baby girl 💗 I would definitely reach out to somewhere like Tommy's to see if they can help. They have different clinics London, Manchester etc and may be able to offer guidance.

@Cheryl thank you hun I will try get in touch x

Have they mentioned steroids to boost her lungs? Idk if the cysts can clear up whilst in the womb. However, I've had cysts in early pregnancy that cleared, so I'd like to hope like ours can, babies can too... Are you having regular scans? xx Have they actually diagnosed her with a kidney condition or just said she has cysts on them? xx

Not exactly the same situation but my waters broke at 15 weeks and she had literally no waters around her my whole pregnancy. They told me i would go into labour within 24 hours upto a week. Her prognosis was very bad and gave me less than 5% of her surviving as her lungs would of not developed and she could have lots of health problems. Or most likely pass away at birth. I was told to terminate by 2 different hospitals/ fetal medicine doctors. I declined and said i want to carry on. Every one was shocked that i made it to 29 weeks without any complications/ infections. They also said her stomach was very small. At 29 weeks i had an emergency c-section as i passe out because my placenta abrubted. She was born crying and breathing. She was intubated straight away and was then on bipap then cpap then on normal oxygen in the nicu for 8 weeks. She was discharged without and medical intervention and She is a healthy 13 month old. Have faith, i know what doctors tell is harsh and is facts

But the hard part about this is that we never know. I wanted to give her a chance and i am so thankful that i chose to carry on and not listen to the doctors. I am praying for you and your little girl, i am sure she will be a fighter like mine 🙏

@Bercem this does makes me have a little more hope and I’m so glad your daughter is okay I just pray I have the same outcome but even knowing now someone has gone through similar to me has helped me not feel so alone x

My son passed away shortly after his birth (because of a different health condition). My personal experience is that being prepared for the worst to happen is not just pessimistic or giving up on them, it’s preparing for the future too. I would get in touch with some charities like Sands, they have amazing volunteers and I would really strongly advise to get specialised perinatal psychological/psychiatric support asap. Because no matter what happens, you will need extra support and to process what is happening to your and your baby’s life. I will be thinking of you and your little one ❤️