Struggling to be here

I had found relief in taking ondansetron but after seeing my midwife at 9 weeks she told me I should never been given it and told me I can’t take it again until 12 weeks and my GP is refusing to prescribe anymore until 2nd trimester also. Now i’m back to vomiting several times a day (despite taking cyclizine and stemetil 3 times per day) and i just don’t want to carry on. I don’t feel grateful I don’t feel happy I don’t feel any sense of ‘I can do this’ I just feel like I want to be in a coma because I can’t face existence and yet that makes me feel so guilty because it’s not the best conditions to grow a baby dehydrated, malnourished and depressed. How do i make it through these next 2.5 weeks without ondansetron?😥
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Have you tried trying out different medications as i personally found cyclizine and stemetil to either not work at all or it made my sickness 100 times worse! the only way i’m managing my sickness is by being on 3 different medications at once 😅 Hopefully they’ll re prescribe ondansetron soon as i know that’s the best one out there!

Can you ask for other medicines if the current combination is not working for you? I was given metaclopramide in the first trimester

Seriously, change health providers. And get ACTUAL HELP. These are not willing to help you for whatever reason (usually outdated professionals won’t help HG patients). What country are you from? There are different organizations in different countries that will help you find the help you need. In the Us there is HER HG foundation. They have a referral network to find professionals trained in Hg that are willing to help. This is the link. https://www.hyperemesis.org/get-help-now/professional-referral-network/ I see on their referral map that they have some contacts in Europe amd other countries too. You can also contact them directly in this email help@hyperemesis.com

Thanks unfortunately the only drug i haven’t tried that’s considered safe for this stage is metaclopramide , did you have any side effects? I have been warned against this as it can cause issues with low mood and i suffer from various MH problems already so have been advised to be cautious 😥 Thanks for sharing the link i’ll take a look, just at the end of my ability to cope :/ x

Get vitamin B6, it could help! When I couldn’t get medication, I would get vitamin B6 with doxylamine succinate (sleeping tablet) and it would alleviate the symptoms and I would feel sleepy either

I’m so sorry, lovely. Please do find another doctor and ask for ondansetron. Even check yourself into hospital if you need as they may be more likely to give it to you. Find your local HG community/FB groups and see if someone has leftover supply if you need- I had like 40 tablets at the end of my pregnancy that I gave to another mama. Have you tried Doxylamine? That helped me tremendously, but I don’t think it’s regular used in some countries. It’s available over the counter, but some chemists will give yoy a hard time if they know you’re pregnant. If you will try it without a doctor, I’d make sure it’s safe to take alongside your other meds (I took ondans and doxylamine my whole pregnancy). Metoclopramide was horrible for me, I definitely wouldn’t take it when you’re already struggling.

Also, please reach out to your support network for some extra TLC and support. Medical ‘professionals’ like this who don’t put mothers’ mental and physical health before unnecessary protocol on paper are the reason there has been such awful tragedy with HG sufferers in the past (and present). To prescribe something that gives relief and then take it away is so incredibly stupid and harmful, I’m so sorry they’ve done that. You can do this. I promise. It may very well be the hardest thing you ever ever have to do, it certainly was for me, but you can do it.

Also don’t let them scare you, I was on all the meds from 6 weeks and it was much healthier for me and my baby that I was medicated to be vomiting less and getting IV fluids than it was to be severely dehydrated and still losing weight from constant vomiting.

Your midwife is talking absolute bullshit. If you’re from the UK have a look at pregnancy sickness support. They have the updated guidelines for medication and are really good at advising. They can support you to advocate for yourself. I’ve been prescribed all anti sickness meds and steroids since 8 weeks. Even if there was a risk (recent guidelines show otherwise) it’s completely your choice whether to take them, not your GP!!

I was prescribed and took ondansetron from 7 weeks by my Midwife and consultant and the GP allowed it too all the way to delivery and baby was fine. The risk from ondansetron is tiny - and even then they can’t prove the drug is the cause just that some women who take it go on to have a baby with a cleft. The heart risks have been disproven. For me the risks of untreated HG far outweigh the very very small risk of ondansetron. It is personal choice of course but as others say above - ask for it again if you want it and ask another dr if needed. Sorry you d been through this, I hope you find some relief again soon.

I just keep wondering why this is happening to me, i spoke to my hospital team and they also refused to give it to me till 2nd trimester so i feel stuck. Maybe i’ll call my gp again tomorrow or go to A&E. Grateful for the advice ❤️ i just feel like i haven’t got any fight left tbh😔

Do you have a partner that can be your voice? I know how you feel because I also got to that point and had to delegate all decisions and fight to my husband, I just didn’t have any energy left in me. If you don’t have anyone who can help you find the right help drop me a message and i’ll try to get contacts for you. Sending hugs!

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