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@Caitlin thanks for the reply. I am still waiting for brain scan but I am still bit worried as my sister died of a glioblastoma (brain tumour) in May this year so can imagine the word tumour for my family is very scary. How long did it take for you to get a diagnosis? Congrats on getting pregnant. Do you have regular check ups? Xx
@Kirree I am really sorry to hear about your sister 😔 It is scary, your feelings are totally valid. Prolactinomas are not (usually) cancerous. 95% anyway. It was an unusually quick diagnosis, I got mine the next day. Regardless of the diagnosis, you’ll probably start Cabergoline as it’s the same treatment if you have a tumour or not. I go for a MRI every year and a blood test maybe every 6 months xx
@Caitlin thank you. Yeah definitely scary times. It doesn’t help I have been waiting for an mri for 2 weeks and still I Not seen the endocrinologist yet either. What were you prolactin levels when you got pregnant? If you can remember? I just want them to hurry up and get the mri done so I know where I stand. Other than irregular period like one month 25 next 30 etc and feeling tired that’s it. What were your symptoms? Xx
@Kirree it took me 6 months to get the MRI. So might be a long wait for you 😕 My prolactin levels are 312 when I got pregnant. I haven’t had a period since 2012 so that was my biggest symptom but I just put that down to my implant. A little bit of weight gain but nothing too drastic x
@Caitlin that was such a long wait for your mri. I have just got my mri date in for 24th September so not too long. I haven’t heard from endocrinologist yet but guess that won’t be until after my mri. I do have periods but they are so irregular they gave me ultrasound to check ovaries etc and that all come back all good xx
Hi! My levels were 13,000 when diagnosed with a prolactinoma. I can assure you it’s treatable & you should be able to have babies! You’ll most likely have an MRI and start treatment. Mine was called cabergoline. I was pregnant within two months of taking the medication. X